Role model Finland? – Secondary Use of Health Data for Research and Innovation Purposes
22. April 2020
13:30 - 14:15 Uhr
_Hub 3, Halle 3.2
Diese Session findet ausschließlich in Englisch statt.
Finland is the most advanced digital economy in the EU (DESI). Finland is a pioneer in digital health and the first country in the world that has digitized national health registries originating in the 1960’s, along with digitized biobank data dating back to the 1920’s. The combination of Finland’s digital mindset and approach to solving healthcare problems with our rich data repositories has enabled us to address patients´ problems utilizing real-world data. There is 100% penetration of electronic health records (EHR) and Finland has the only EHR in the world where clinical and social data are layered on top of each other. Furthermore all Finns have 100% access to their EHR and encouraged to contribute to it.
In May 2019 Finland approved legislation on the secondary use of health data, which elevates research and innovation opportunities across health and wellbeing, disease prevention, and predictive and personalized medicine including new methods of treatment.
Findata, the Health and Social Data Permit Authority, is a one-stop shop for the secondary use of health and social data. The data permit authority’s operation is regulated under the Act on the Secondary Use of Health and Social Data, which came into effect 1st of May 2019. Its goals are to enable effective and safe processing and access to data, eliminate overlapping administrative burden, enhance data protection and security and improve register data quality.
In short, Findata 1) grants data permits 2) collects and processes the data and 3) provides the data in a secure IT-environment for data users – all this with fixed time limits. Findata’s core operations started stepwise from the beginning of 2020 and help desk has been open since November 2019.
More information: https://www.findata.fi/en/
Diese Session wird organisiert und durchgeführt von Business Finland.
Kari Klossner , Programm-Manager, Leiter von Smart Life Finnland, Business Finland
Antti Piirainen, Leiter der Kommunikation, Findata – Health and Social Data Permit Authority
Dr. Liisa-Maria Voipio-Pulkki , Generaldirektorin für strategische Angelegenheiten, Ministry of Social Affairs and Health